Help Us in Pioneering Critical Research and Support for the Undiagnosed and Ultra-Rare DEEs image

Help Us in Pioneering Critical Research and Support for the Undiagnosed and Ultra-Rare DEEs

Supporting DEE Families & Research Advancements - Help Us Achieve More in 2024

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DEE-P Connections is a caregiver-led project that addresses the gaps in information and resources for families caring for loved ones with Developmental and Epileptic Encephalopathies (DEEs). Since our inception in December 2019, we've expanded our mission beyond providing resources and empowerment. We now strive to build a thriving DEE community and offer tangible support to families profoundly impacted by epilepsy disorders. Recognizing the power of collaboration, we've also initiated innovative and groundbreaking research projects focused on improving the quality of life for families affected by DEEs.

To continue providing support for DEE families—offering hope through actionable solutions—we need your financial support. Your donations are crucial in empowering this critical work. While we never seek to compete with our partners in raising funds, we are committed to creating a supportive community for those who still have no diagnosis or organization to turn to. Your support is crucial to our mission. Please consider making a donation to help us continue our vital work

Why donate? Here are three life-changing reasons:

  1. Family and Community Support: Your generosity funds essential programs that directly assist affected families.
  2. Research Support: Your donations drive forward-looking research, uncovering new insights and improving the quality of life for those with DEEs.
  3. Advocacy: Our advocacy efforts are transforming policies and raising awareness on both national and global scales.


Text: DONATE to +1(844) 569-0201

Tax Information: Decoding Developmental Epilepsies, home of DEE-P Connections, is a 501(c)(3) tax-exempt organization, Federal Tax ID 47-1822559. Your donation is 100% tax-deductible within the guidelines of U.S. law. Retain the email donation receipt for claiming a deduction on your U.S. taxes, which will be sent to you upon the successful completion of your donation.

Thank you for your support.