Join Us in Pioneering the Future for Undiagnosed and Ultra-Rare DEEs image

Join Us in Pioneering the Future for Undiagnosed and Ultra-Rare DEEs

Supporting DEE Families & Research Advancements - Help Us Achieve More in 2024


DEE-P Connections is a caregiver led project that fills the gaps in information and resources for families caring for loved ones with Developmental and Epileptic Encephalopathies (DEEs). Since our inception in December 2019, we've expanded our goals beyond resources and empowerment to also build a thriving DEE community and provide tangible support to families caring for loved ones who are profoundly impacted by epilepsy disorders. Recognizing that more can be learned by working together, we've also expanded to host innovative and groundbreaking research projects focused on improving the quality of life for families impacted by DEEs.

In order to continue to providing support for DEE families, which offers hope hope through actionable solutions, we need
your financial support. Your donations empower this critical work. We never seek to compete with our partners in raising funds but also provide a community of support for the many who still have no diagnosis or organization they are a part of. If you feel moved to contribute our work and mission, we welcome your support.

Why donate? Here are three life-changing reasons!

amily and Community Support: We offer essential support programs, funded by your generosity, that directly assist affected families.

Research Support:
Your donations propel forward-looking research, unveiling new understanding and improved quality of life for those with DEEs.

Our advocacy work is changing policies and raising awareness on both a national and global scale.

Text: DONATE to +1(844) 569-0201

Tax Information: Decoding Developmental Epilepsies, home of DEE-P Connections, is a 501(c)(3) tax-exempt organization, Federal Tax ID 47-1822559. Your donation is 100% tax-deductible within the guidelines of U.S. law. Retain the email donation receipt for claiming a deduction on your U.S. taxes, which will be sent to you upon the successful completion of your donation.

Thank you for your support.